National Lupus Awareness Day

A group of diverse people wearing purple clothing, holding hands and reaching towards the sky, with a backdrop of a sunny park.. — National lupus awareness day illustration

Hey there Lupus warriors and supporters! Get ready to raise your awareness flags high because it's National Lupus Awareness Day! We've gathered some interesting tidbits about this special day just for you.

When is Lupus Awareness Day?

It's national lupus awareness day on the 19th May.

The Internet History of National Lupus Awareness Day

Let's dive into the virtual world to explore the origins of National Lupus Awareness Day. This day was created to shed light on lupus, a chronic autoimmune disease affecting millions of people worldwide.

Back in the day, before the internet became the go-to place for communicating everything from heartwarming cat videos to important social causes, National Lupus Awareness Day was primarily celebrated through local events and word of mouth. But then, the internet arrived like a superhero, cape flowing in the wind, bringing with it a whole new level of awareness and support for lupus warriors.

Social media platforms played a significant role in spreading the message of National Lupus Awareness Day beyond the borders of local communities. People started sharing stories, organizing online fundraisers, and connecting with each other in virtual support groups.

Since then, the internet has been a valuable tool for raising awareness about lupus, providing education, and promoting research efforts. Websites, blogs, and online forums have become go-to resources for those seeking information and support.

With every passing year, the internet buzz surrounding National Lupus Awareness Day has grown stronger. Whether it's sharing personal stories of triumph, organizing virtual events, or posting purple-themed selfies, the online lupus community continues to inspire, inform, and bring people together like a tightly knit virtual family.

History behind the term 'Lupus Awareness'

2004

Lupus Foundation of America launches Lupus Awareness Month.

In 2004, the Lupus Foundation of America declared May as Lupus Awareness Month. This initiative aimed to raise public awareness about lupus, a chronic autoimmune disease that affects millions of people worldwide. Lupus is characterized by inflammation and damage to various organs, causing a wide range of symptoms such as fatigue, joint pain, skin rashes, and organ dysfunction.

1950

Discovery of Lupus

In 1950, a major breakthrough occurred when the immune system disorder known as Lupus was identified and named. The word 'lupus' is Latin for 'wolf', and it was chosen due to the characteristic rash resembling a wolf bite. This autoimmune disease can affect various organs and tissues, leading to a range of symptoms such as joint pain, fatigue, and skin problems.

1951

Discovery of Autoimmune Disease

In 1951, Lupus, an autoimmune disease, was first recognized and described by Malcolm C. Hargraves, a pathologist at the Mayo Clinic. He observed abnormal structures in the nuclei of cells when examining tissue samples of patients with a mysterious disease. These structures were later named 'LE cells' after the acronym for Lupus Erythematosus, the scientific term for the disease.

2000

Discovering the Link

In the year 2000, researchers began to uncover the link between autoimmune disease and lupus. This groundbreaking discovery shed light on the underlying cause of this complex condition and sparked a renewed interest in lupus research.

1971

The discovery of systemic lupus erythematosus

In 1971, a breakthrough was made in the medical field with the discovery of systemic lupus erythematosus (SLE), a complex autoimmune disease. SLE affects multiple organs and can lead to various symptoms, including joint pain, fatigue, skin rashes, and kidney damage. This discovery set the stage for raising awareness about lupus and its impact on individuals' lives.

2001

The Discovery of Lupus Awareness

In 2001, the term 'lupus awareness' first came into prominence as a means to raise public understanding and knowledge about the autoimmune disease known as lupus. Lupus is a chronic condition in which the immune system attacks healthy cells and tissues, causing a range of symptoms. The term 'lupus awareness' quickly gained traction as a way to promote education about this often misunderstood disease.

1950

Discovery of Lupus Erythematosus

In 1950, a British dermatologist named Sir Malcolm Morris coined the term 'lupus erythematosus' to describe a chronic autoimmune disease characterized by inflammation of the skin and organs. The term 'lupus' derived from the Latin word for 'wolf' due to the facial rash that often resembles a wolf's bite. At this stage, awareness was limited, and the broader public and medical community were still unfamiliar with the condition.

1996

Inception of Lupus Awareness Month

In the year 1996, Lupus Awareness Month was first established by the Lupus Foundation of America. This annual observance takes place throughout the month of May with the aim of increasing public understanding and spreading awareness about lupus, a chronic autoimmune disease.

2009

First World Lupus Day observed.

In 2009, the first World Lupus Day was observed on May 10th. This day was established by lupus organizations around the world to promote awareness and support for individuals living with lupus. The annual observance provides an opportunity for people affected by lupus to share their stories, educate others, and advocate for better healthcare and research funding.

2004

World Lupus Day

In 2004, a significant development in lupus awareness occurred with the establishment of World Lupus Day. This day, observed on May 10th of every year, was created by lupus organizations from around the world to raise global awareness about the disease and rally support for those affected.

1970

Formation of Lupus Support Groups

During the 1970s, individuals with lupus began forming support groups to share experiences and information. These groups played a crucial role in raising awareness about lupus and providing emotional support to patients. The increasing number of support groups helped shed light on the challenges and impact of living with lupus, leading to a growing recognition of the disease within the affected communities.

1977

Lupus Awareness Initiatives Begin

In 1977, the first notable Lupus awareness initiative took place. The Lupus Foundation of America (LFA) was instrumental in raising awareness by providing support, educational resources, and advocating for research. This marked the beginning of a collective effort to increase public understanding of the disease and reduce the stigma associated with it.

1977

Formation of Lupus Organizations

In 1977, several Lupus organizations, including the Lupus Foundation of America, were established to raise awareness, support research, and improve the lives of individuals with Lupus. These organizations played a crucial role in educating the public, advocating for better treatments, and providing resources for those affected by the disease.

1992

The creation of World Lupus Day

In 1992, the Lupus Foundation of America, alongside other lupus organizations from around the world, initiated World Lupus Day. This special awareness day, observed on May 10th, aimed to globally spread knowledge about lupus, dispel misconceptions, and support individuals living with the disease. World Lupus Day played a significant role in enhancing public understanding and recognition of lupus as a health concern.

2005

World Lupus Day

In 2005, World Lupus Day was established as an annual observance on May 10th. This international event aimed to raise awareness about lupus and its impact on individuals, families, and communities worldwide. It became a platform for sharing stories, promoting education, and advocating for better treatment and support for those living with lupus.

2004

The Lupus Awareness Campaigns Begin

Three years after the term emerged, in 2004, various organizations and foundations dedicated to lupus advocacy and research started organizing awareness campaigns. These campaigns aimed to shed light on the impact of lupus on individuals' lives, encourage early diagnosis, and raise funds for research. Public events, symposiums, and awareness walks became important components of these campaigns, drawing attention to the disease and its symptoms.

2009

Lupus Awareness Month

In 2009, Lupus Awareness Month was designated in the United States. May was chosen as the month to coincide with World Lupus Day. This month-long observance aimed to increase public understanding of lupus, promote early diagnosis, and encourage support for research efforts. Various organizations, including the Lupus Foundation of America, led campaigns and initiatives to educate the public about lupus during this month.

2014

Lupus Awareness wristbands gain popularity.

In 2014, lupus awareness wristbands gained significant popularity as a symbol of support and solidarity for those affected by lupus. These wristbands, often featuring the color purple and the phrase 'Lupus Awareness,' helped raise awareness and encouraged conversations about the disease. Wearing the wristbands became a visible sign of support for lupus patients and a way to spark discussions about the need for continued research and improved treatments.

1988

Founding of Lupus Awareness Month

In 1988, the Lupus Foundation of America designated May as Lupus Awareness Month. This initiative aimed to educate the public and medical professionals about lupus, its symptoms, and the importance of early diagnosis. Lupus Awareness Month played a significant role in disseminating information about lupus to a wider audience and fostering a sense of community among those affected.

1991

First Lupus Awareness Month

In 1991, Lupus Awareness Month was officially established in the United States. This month-long campaign aimed to increase public knowledge about Lupus, promote early diagnosis, and support ongoing research efforts. It helped bring attention to the disease, fostered community support, and encouraged individuals to seek medical evaluation if they displayed Lupus-related symptoms.

2004

Introduction of Lupus Awareness Month

The year 2004 marked the introduction of Lupus Awareness Month, observed in May each year. Lupus organizations, along with healthcare professionals and patient advocates, utilized this month-long campaign to raise awareness about the disease's impact on individuals, families, and communities. Educational programs, community events, and social media initiatives became integral parts of Lupus Awareness Month, promoting widespread understanding and support.

2005

Purple as the Color of Lupus Awareness

By 2005, the color purple became associated with lupus awareness. Purple ribbons, bracelets, and other items became symbols of support for individuals living with lupus and their families. The color purple was chosen to represent the bravery and endurance of those affected by lupus, as well as to raise visibility for the cause.

1998

World Lupus Day is Established

1998 saw the establishment of World Lupus Day, which is observed annually on May 10th. This global initiative aims to raise awareness about Lupus, promote early diagnosis and treatment, and support individuals living with the disease. World Lupus Day has played a crucial role in uniting communities worldwide and encouraging discussions surrounding Lupus.

2009

Lupus Awareness Ribbon

The year 2009 marked the introduction of the lupus awareness ribbon, a symbol representing solidarity and support for individuals living with lupus. The ribbon is typically depicted in purple, the recognized color associated with lupus awareness. Its purpose is to foster dialogue, spread knowledge, and encourage others to take action against lupus.

2004

Lupus Awareness Month Designation

In 2004, May was officially designated as Lupus Awareness Month in the United States. This important designation provided an entire month dedicated to increasing awareness, educating the public, and supporting those affected by Lupus. Since then, various organizations and communities have organized events, walks, and campaigns to spread awareness and raise funds for research.

2011

Purple Movement for Lupus

In 2011, the Purple Movement for Lupus gained momentum as a grassroots campaign to create a visible impact. Its objective was to turn cities, landmarks, and social media profiles purple for a day in May, during Lupus Awareness Month. This initiative aimed to attract attention and engage communities in discussions surrounding lupus.

2014

Purple for Lupus

The year 2014 marked an important milestone in lupus awareness as the 'Purple for Lupus' campaign gained traction. Purple, a color symbolizing awareness and hope, became synonymous with lupus advocacy. People across the globe wore purple ribbons, clothing, and accessories to show support for individuals living with lupus and to raise funds for research and patient support programs.

2011

World Lupus Day

In 2011, World Lupus Day was established to be observed annually on May 10th. This international awareness day aims to increase public understanding of lupus, promote early diagnosis, and highlight the need for improved patient care. World Lupus Day brings together individuals, organizations, and healthcare professionals from around the world to unite in the fight against lupus.

2008

Lupus Awareness Color

In 2008, the color purple was officially designated as the Lupus Awareness color. The Lupus Foundation of America chose this vibrant hue to symbolize hope, courage, and awareness. Purple ribbons, bracelets, and other merchandise began to be used widely as symbols of support and solidarity with those affected by lupus, further enhancing the recognition of lupus awareness efforts.

2002

World Lupus Day

In 2002, the first World Lupus Day was observed on May 10th. This international awareness day was created to generate global attention to Lupus, foster solidarity among Lupus organizations worldwide, and promote a better understanding of the disease. World Lupus Day is marked by various educational activities, fundraising events, and advocacy efforts across different countries.

2004

World Lupus Day

May 10th was officially declared as World Lupus Day by the World Lupus Federation and various other lupus organizations worldwide in 2004. World Lupus Day aims to raise global awareness about lupus, improve the understanding of the disease, and garner support for those living with lupus. The day is marked by educational events, campaigns, and fundraisers to support research and advocacy efforts.

2017

Lupus Awareness Month recognized globally.

By 2017, Lupus Awareness Month gained global recognition. Many countries started participating in the awareness campaign, spreading knowledge about lupus through various outreach activities, events, and educational programs. Governments, medical institutions, and non-profit organizations collaborated to promote early diagnosis, proper management, and increased funding for lupus research, ultimately improving the lives of individuals affected by the disease.

2013

Purple Ribbon Symbolizes Lupus Awareness

The year 2013 marked the adoption of the purple ribbon as the official symbol of Lupus awareness. The ribbon serves as a visual representation of support and solidarity with those battling the disease. Wearing a purple ribbon during Lupus Awareness Month and on World Lupus Day has become a way for individuals to show their support and raise awareness.

2003

Purple as the Lupus Awareness Color

In 2003, the color purple was officially designated as the Lupus awareness color. Wearing purple ribbons, clothing, and accessories became a symbol of support and solidarity with individuals living with Lupus. The purple color represents the strength, courage, and resilience of those affected by the disease and serves as a visual reminder to raise awareness about Lupus throughout the year.

2014

Butterfly Symbolism

By the year 2014, the butterfly had become widely recognized as a symbol of hope, transformation, and resilience within the lupus community. The butterfly's delicate yet vibrant nature reflects the experiences of individuals living with lupus. It serves as a powerful emblem that helps raise awareness and support for lupus initiatives.

2019

Advancements in Treatment

In recent years, there have been significant advancements in the treatment of lupus. New medications and therapies have been developed to manage symptoms and improve the quality of life for individuals with lupus. These breakthroughs have given hope to those affected by lupus and have further emphasized the importance of lupus awareness in driving research and innovation.

2012

Lupus Awareness Month Proclamation

In 2012, the United States Senate officially declared May as National Lupus Awareness Month. This proclamation aimed to acknowledge the significant impact of lupus on individuals' lives and promote continued efforts to raise awareness, improve treatment, and support scientific research. It also served as an opportunity for advocacy and fundraising campaigns that further amplified lupus awareness across the country.

2017

Social Media Amplification

With the rise of social media, the term 'lupus awareness' found a powerful platform for spreading awareness. Online campaigns, hashtags, and sharing personal stories became popular ways for individuals to engage with the cause and educate others about lupus. Social media platforms have played a significant role in fostering a sense of community among those affected by lupus and creating opportunities for support and advocacy.

2016

Social Media Campaigns and #LupusAwareness

With the rise of social media platforms, individuals and organizations advocating for lupus awareness started using the hashtag #LupusAwareness on various social media platforms. This digital campaign helped to further spread information, engage the public in discussions, share personal stories, and connect individuals affected by lupus worldwide. The online presence and engagement improved the visibility and understanding of lupus among a broader audience.

2020

Virtual events and social media campaigns increase lupus awareness.

In 2020, due to the COVID-19 pandemic, physical gatherings were limited, leading to the rise of virtual events and social media campaigns to raise lupus awareness. Online platforms became vital in connecting individuals, sharing stories, and disseminating accurate information about lupus. Virtual walks, webinars, and social media challenges helped maintain the momentum of the awareness month, ensuring that the message of support and understanding reached a larger audience.

2017

Lupus Warrior

In 2017, the term 'Lupus Warrior' gained popularity. It refers to individuals living with lupus who demonstrate immense strength, courage, and resilience in their daily battles against the disease. The term serves to inspire and empower those affected, reinforcing a sense of community and support among lupus warriors worldwide.

Did you know?

Did you know that lupus is known as the "butterfly disease"? It's because the characteristic rash that appears on the faces of some lupus patients resembles a butterfly in flight. Definitely a unique way to stand out in a crowd!